Make them walk the plank! I love Backyardigans and have missed them. We have been without cable for a year and got it back yesterday. We will have it long enough to watch the Tour de France and World Cup then will have it disconnected, again. Or at least that's the plan. I see reinstalling cable as a slippery slope we may not be able to climb up again. It's so easy to become a TV bum and it's fun to boot. We'll see how strong we are at the end of the summer. ;)
So. Let's see. I went to Napa with Heather and Christy, had lots of fun, drank too much wine and paid a lot of money to ship wine home that I just found in a local liquor store. Next time I go to Wine Country I will take the liquor store's number so I can check to make sure they don't carry what I want to ship and I will not rely on the winery rep who insists, "You'll never find that in Alabama." Apparently we're not as backwoods as you thought we were, Napa!
We only did what we wanted to, went to bed at 8pm CA time and woke up way too early. It was a great trip and in spite of me being preoccupied with Tater's surgery, Heather having to prepare for a huge presentation for work and Christy having motion sickness, I think we actually enjoyed ourselves. I'm not sure as I haven't truly caught up on sleep yet, but I think we did.
Tater's urology surgery went well. The doctor said it was a complicated process but it was successful and Tater will not have to wear a patch to receive hormones during puberty (you're welcome, son).
He also had a flexible bronchoscopy while he was sedated and it was the news from that procedure which threw us for a loop. He's had secretions in his right lung that may be the cause of his constant snottiness and quick-to-bottom-out sicknesses. We're treating that with a 3-week course of antibiotics.
His upper airway has also done something that can happen when it is not being used, having been circumnavigated by a trach for 2 years; it has collapsed. What this means for any planned trach removal (decannulation), we're not sure. It does mean we will eventually have to get more doctors on board and I'm just conflicted about it all. The go-to guys in this field are in Cincinnati, and I would hate being so close to THE guys and not using them. But going to Cinci means entering a new medical system that will want to run it's own tests. It means new doctors wanting to research Tater's underlying condition. It is difficult to introduce a child with a chronic, undiagnosed condition to experts on this level and expect to get out with a simple, "this is when the surgery will be."
Do we really want to go down that road again? I flirt with wanting to find more answers about his condition all the time and continually come back to no. We have always said if he regresses, then we will pursue answers. Is this considered a regression or is it a side-effect? Is there a difference? Can I make your head spin anymore?
I know it will all work out the way it's supposed to and I have no control over any of it but I'm still a little ticked off and not very accepting of the (seemingly) inevitable at the moment. He will most likely still have the trach removed but it may be a little farther off than anticipated and may require a couple of surgeries. Or he could still be on track to have it removed soon. We don't know. One would think we would be used to the uncertainty by now but I think if you have any amount of hope, uncertainty will always upend you.
He's happy and I'm reminding myself that's ALL that matters. All that matters. Let me dwell on that a bit. Mr. A and I are heading off this weekend for an anniversary trip. Leeda and her boys are coming to take care of our boys and we're going to sit in a hotel all weekend and not do anything but eat and sleep. I cannot think of anything I would rather do.
Wednesday, June 2, 2010
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