Saturday, December 27, 2008

mERry Christmas

It wouldn't be a great Christmas if not for a trip to the ER. Tater woke up Christmas morning with a fever and when he still had it last night and Tylenol and Motrin weren't working to my satisfaction, off to the ER we went. He wasn't admitted, thank God, but he has some kind of something they couldn't find the source of. No pneumonia, no ear infection, just a really high white blood cell count that says he has something... He had a round of IV antibiotics at the hospital and came home with a prescription for 2 oral antibiotics. I'm not convinced it's bacterial and am reluctant to start antibiotics but I do not have a medical degree so here goes 10 days of gross diapers. Merry Christmas!

Seriously though, we all had a great Christmas in spite of the fever and got spoiled more than we should have. The boys got some great toys from the family and our big project this week is to clean out the playroom and get those great toys out of the living room. We've had visits from Leeda and her boys, Aunt Gigi and Uncle Craig and Kajja is here until Monday. Toser thinks everyone who visits is his personal storybook reader and everyone has been nice enough to comply. We were able to see my entire family Christmas Eve for my grandmother's 80th birthday and we loved being around everyone at once. It's been a great holiday for us.

I hope you all had a great holiday yourself! We're pretty slammed until New Year's around here so I'll check back in when 2009 rolls around.

Friday, December 12, 2008

Boogerness

Tater lost his TV privileges today. He had a stand-off with his Occupational Therapist in therapy today. A 30-minute stand-off and the result is that he will not be able to watch Blue's Clues with his brother this evening. Now, Tater loves him some Blue's Clues and he will be very upset that he can't watch it. The question is whether he'll get that he's missing out because he refused to draw a stupid line on a piece of paper 6 hours earlier. I know. It's harsh, but we were trying everything to get him to draw that line-something we know he can do, something he does all the time but refused to do so today in order to pass an OT evaluation the therapist needed. He didn't do it and I had already said if he didn't do it, he would lose his TV privileges. So, now, I have to punish him and he won't even know why.

I never thought I would be having these type of discipline issues with Tater. It's frustrating because there's only so much we can do to get him to do what we want/need him to do. His therapists and we are always looking at how much he isn't doing something because he doesn't want to vs. because he really can't. It's so hard to tell the difference. But if that kid is going to be worth anything in this life, he needs to suck it up and do the things he doesn't want to do. He's going to have it harder than the rest of us and it's better that he learn that now rather than later. It's not fair and I hate it for him but I love him too much not to push him harder than he wants to be pushed. Plus, I know he can reason because today during a trial off the vent I told him if he couldn't calm down he would have to go back on. He immediately calmed down. It was funny how fast he calmed down because he didn't want to go back on that vent.

The really funny thing about all this is that I love it. I love that he's being a typical almost 2 year-old. I love that he hits his brother for no reason. I love that he gets mad when he doesn't get his way. I love all this because it's means he's actually typical for his age. He's never been typical for his age. It's great that he's on track for something even if it is the least appealing thing for him to be on track with. Pray that I have the patience to deal with it.

(totally unrelated, a picture of the 4 of us):

Friday, December 5, 2008

Dreaming Big

You would think that having a son with multiple medical issues would make me a little willing to suck it up when I come down with a small cold. Not so. I become a complete pansy when it comes to being sick. I hate not being able to breathe through my nose because it means I can't smell and if I can't smell, I can't taste food and what is the flippin' point in eating if you can't taste food? So I drive everyone around me crazy because I moan and groan and am pitiful. Ahem. I'm better now. Thanks for asking. And please take Mr. A out for a drink because he definitely deserves a few for putting up with me this last week.

So now the excuse for not updating is out of the way, we had a great Thanksgiving, thank you very much. Too much food and being around family is always good for the soul. And of course the real reason we get together as a family is POKER. I've been opting out of the games because I hate to make everyone lose to me but I can now rest, assured that my 11 year-old niece can kick everyone's butt in the game now.

Toser is very excited about Christmas. Every day he asks, "Is it Chrismas today?" And he definitely dreams big. I thought I would have a couple of years before he started to realize he can have things he sees on TV and in catalogs. Well, that reality came crashing down on my head the other day when I asked him what he wanted for Christmas. Whew. If he's asking for this type stuff now, what in the world will he be asking for in 10 years?! But he's a great big brother and a great kid so we may spoil him just a little this "Chrismas."

Tater has been rocking in therapy lately. He's still a big, fat faker and gets all lower lip when he thinks something is going to be hard but I think I can safely say that my youngest booger will be walking, or at least well on his way, this time next year. Now, you know what a big thing this is for me to say. I hate to put things out there to only have to recant them later. It's just he's been doing so well and I think he really wants this. He's been doing a lot of things lately I only dared to dream he would do, so I'm going to go ahead out on this limb and say that he's going to do it. My kid will walk. It may not be pretty and it's going to be hard, but he will walk. And then we're going to have a huge party and you're all invited.

So, here's to big dreams and having them come true. I hope some of your dreams come true soon, too.

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