Well, I do have some things to update. We went to Birmingham for a sleep study and came home with a new machine (contraptions that Tater is now hooked up to when he goes to sleep: 5). And I definitely have to tell you about Malfunction Sunday. But, I'm waiting for some phone calls about logistical things and will have to do all that later. In the mean time, read this about raising special needs children:
"Welcome to Holland"
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting. After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland." "Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy." But there's been a change in the flight plan. They've landed in Holland and there you must stay. The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place. So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met. It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts. But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned." And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very, very significant loss. But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
(Written by Emily Pearl Kingsley in 1987, to help others understand what it is like to raise and take care of a special-needs child)
5 comments:
Cates--Your strength never ceases to amaze me :) Love you and your most special tulip
Aunt Christy
That is simply beautiful. I agree with Aunt Christy. The Tater Tulip is a rare and special find.
Much love,
Amy
I thought the very same thing about you the first months after you were born. Just a joke! you know I love you! It's gonna get better when it warms up outside. I just know it is. So when did he get the new nick name "tulip"
Aunt wissa
Continued prayers for the little guy!
We love you guys and are praying for you all - especially sweet little Tater.
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